What is the Access Challenge your Family is Facing?

Below are the access challenges families have shared. We have provided some guidance under each specific challenge including a link to a sample appeal template specific to the challenge. Just click the plus button to learn more.

Please reach out to your Medicaid managed care plan’s member services listed on your insurance card. Ask for approved Medicaid providers for ABA therapy near your home. ABA may also be called adaptive behavior support services.

As mentioned earlier, the main access challenge is the very limited number of Medicaid-approved ABA providers. If your managed care plan (MCO) could not connect you to ABA providers in your community approved by Medicaid, please consider filing an appeal with the MCO. Find the appeal template located on the right of this page called "We cannot Find ABA Providers who take Medicaid." This template includes instructions on how to complete the appeal and where to send the appeal.  

It is great you have found an approved Medicaid provider, but if ABA therapy cannot start in a reasonable amount of time and you are on a long waitlist, consider filing an appeal with your managed care plan (MCO). Find an appeal template located on the right of this page called "We cannot Find ABA Providers who take Medicaid." This template includes instructions on how to complete the appeal and where to send the appeal. 

If your provider is a Medicaid-approved provider and employs a licensed practitioner to supervise the behavior analyst (BCBA), Medicaid should cover services. 

If your provider is not a Medicaid-approved provider and does not employ a licensed professional to supervise the behavior analyst (BCBA), you could ask your provider to consider requesting a single case agreement from your Medicaid managed care plan (MCO). If a single case agreement is denied by your MCO, please consider filing an appeal. Find the appeal template located on the right of this page called "We were denied a single case agreement." This template includes instructions on how to complete the appeal and where to send the appeal. 

Some families found ABA providers that met the Medicaid requirements and started ABA therapy. After ABA started, if the provider no longer employed the required licensed professional to supervise the behavior analyst (BCBA), your services may have been put on hold. If ABA therapy was put on hold, families could ask the provider to consider requesting a single case agreement from the managed care plan (MCO). If a single case agreement is denied by your managed care plan, please consider filing an appeal. Learn more about single case agreements below. Find the appeal template located on the right of this page called "Our ABA therapy started but is now on Hold because of no Supervisor for the Behavior Analyst." This template includes instructions on how to complete the appeal and where to send the appeal. 

If your Medicaid managed care plan (MCO) denied your Medicaid-approved provider’s authorization request for services because your child did not meet medical necessity for ABA for any reason including based on your child’s age or severity, please consider filing an appeal with your MCO. Find the appeal template located on the right of this page called "We were denied ABA due to our Child's Age or Severity" This template includes instructions on how to complete the appeal and where to send the appeal. 

We would like to hear about the challenge your family is facing accessing ABA therapy within your Medicaid insurance. Please email us at help@ilasd.com so we can learn more and offer any guidance we can.

A single case agreement could possibly allow your ABA provider to contract with your managed care plan (MCO). ABA providers that are not Medicaid approved or obtained Medicaid approval but no longer employ the required supervisor for the behavior analyst (BCBA) can make a request for a single case agreement. If the single-case agreement is denied, please consider filing an appeal. 

Action Alerts Will Be Coming Soon.

We encourage families to file appeals with their managed care plans if they are not getting access to ABA services. See sample templates on the highlighted area of this page and choose the template that matches best with your family's specific challenge. 

We will soon be posting advocacy action alerts on opportunities for your family to advocate for change.

Advocacy Action Alerts as of September 1, 2023 - Medicaid Coverage of ABA Therapy will be opening up this Fall!

Advocates passed state legislation that will now require Illinois Medicaid (HFS) to allow Behavior Analysts (BCBA or Board Certified Behavior Analysts) to practice ABA therapy without a licensed supervisor to oversee their work. This supervision requirement was the biggest barrier families faced when trying to access ABA because there were not enough supervisors to meet the demand. Our Coalition is working to support ABA providers to enroll in the Medicaid system and we hope families will be able to access ABA services by early to mid November 2023. Please reach out to us on our contact page if you have any questions.

Here is our brief video about specific advocacy actions families can implement to advocate for their loved one.

One-Pager Access Alert for Families, Providers & Stakeholders

Lack of ABA Access Alert for Families with Medicaid Health Coverage May 2023 (English)

Alerta de información para padres y cuidadores (Spanish)

Our Coalition is thankful for our partners in developing informational materials for families. Thank you to the Illinois Council for Developmental Disabilities and the Illinois Autism Taskforce.